Pulmonary fibrosis

Find out about the different types of pulmonary fibrosis, the symptoms, how it's diagnosed, and how it's treated. If you have been diagnosed with pulmonary fibrosis, use our Pulmonary Fibrosis Passport to check you're getting the right care.

About pulmonary fibrosis

Find out about pulmonary fibrosis

What is pulmonary fibrosis?

Pulmonary fibrosis is the end result of many different conditions that cause scar tissue to build up in your lungs and make breathing increasingly difficult.
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What are the causes of pulmonary fibrosis?

On this page we explain the different possible causes for pulmonary fibrosis (the scarring of the lungs).
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What are the symptoms of pulmonary fibrosis?

The different types of pulmonary fibrosis have similar symptoms. You’ll have tests and speak to a specialist consultant to find out exactly which type you have.
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How is pulmonary fibrosis diagnosed?

Pulmonary fibrosis is diagnosed through a number of different tests and is a joint effort from specialist teams. On this page we explain the tests you might have if it’s thought you might have pulmonary fibrosis.
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Treatment for pulmonary fibrosis

Your treatment will depend on the cause of the fibrosis. Once lung scarring occurs in the lungs it cannot be reversed, so there is no cure for existing fibrosis, whatever the cause.
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Questions to ask your health care professional

It can be difficult to know what to ask your GP, nurse or specialist when you have PF.
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Pulmonary fibrosis self-management plan

If you’ve been diagnosed with pulmonary fibrosis, including IPF, our organiser can help you take care of yourself and feel more in control.
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Support for pulmonary fibrosis

Get in touch with our friendly helpline team for more information about pulmonary fibrosis and practical support.

Groups + support

Find support in your area, including support groups, exercise and singing for lung health.

Pulmonary fibrosis resources

Tools to help you manage your condition

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Your pulmonary fibrosis Patient Passport

Your pulmonary fibrosis Patient Passport is a best care checklist that can help you find out whether you’re receiving the right care for your pulmonary fibrosis and what to do if you’re not.

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Living with pulmonary fibrosis booklet

Learn all about pulmonary fibrosis. 

Types of pulmonary fibrosis

Find out about the different types of pulmonary fibrosis

What is IPF?

Idiopathic pulmonary fibrosis (IPF) is a lung condition that scars your lungs and reduces the efficiency of your breathing.
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What is sarcoidosis?

Sarcoidosis, also called sarcoid, is a condition where inflamed cells join together to make tiny lumps called granulomas. This can happen in any part of your body.
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Connective tissue and autoimmune diseases

For reasons that we don’t understand fully, sometimes the immune system turns against the body.
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Drug-induced interstitial lung disease

This page is about interstitial lung disease (ILD) caused by medication (drugs) or treatment.
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